Team FaithFULL
Dedicated to the awareness & search for a
CURE to CYSTIC FIBROSIS:
a chronic, progressive & life-threatening genetic disease.
Who we support & who supports us: provides many answers to questions about CF.
Ch2-4explains with graphics what is wrong with cells in the CF body. | ||||||||||||||||||||||||||||||||||||||||||||||
|
Our sweet baby girl, Faith, has Cystic Fibrosis. This site has been created in order to welcome the spread of awareness of this horrible disease & to serve the CF Foundation in hopes of a nearby cure. You will also find updates about Faith, CF news & local CF events for the Sacramento area. Through significant effort by all, Team FaithFULL raised over $18,000 last year between the Walk & our Race Car event in September (which we WILL have again in ’08)! A special thank you to everyone who helped us not only reach, but also exceed our original goal AGAIN! This year our team goal will start at $12,000 with hopes of again surpassing it! You can make a difference by simply making a donation & sharing this info with just *one* person, but we’d LOVE to have you JOIN our team, too! In 2007, we had over 50 people walk on our team at the capitol! Click the buttons above to donate &/or join us! Please watch Faith's 2008 video above & know that this fund-raiser will be helping to extend the health & life of Faith & 30,000 others battling CF. We are still losing precious lives to CF every day! *ABOUT Faith:* How do you respond to a question like that from a 2.5 year old?...I’ll tell you that on days when I’m literally laying on her with most my weight so she can have 5 vials of blood drawn to check how her body is coping with CF, things surely don’t seem to feel OK. Sadly, those times are only minimal compared to what she may go through someday soon….for every time she gets sick, she walks the tight rope of possibly needing hospitalization and IV’s to get through the infection. Donations are used efficiently and effectively toward supporting research & specialized care that improves the quality of life for those with CF. And, it's tax-deductible.
We look forward to sharing our family, team FaithFULL news & precious memories with you for years to come! Feel free to explore the site, it is a work in progress. You can even leave a message in the guestbook!
----------------------------------------------------------------------------------------------------------------------------------------------------------------
Dearest 2008 Team FaithFULL & Friends~
It’s 2008 & Faith would like to invite you to become one of her Heroes by joining Team FaithFULL as we begin our team’s 4th year at the *Cystic Fibrosis Foundation's Great Strides Walk* in Sacramento on Saturday,
May 3!
As Faith’s mom, CF advocate, volunteer & team leader, my objective is to reach out to as many people as possible, starting with you. As a team member, you are asked to raise money by encouraging your friends, family & business associates to contribute to a worthy cause. You can tell people that their 100% tax-deductable donations will be well spent towards investment in vital CF programs to support research, care & education.
Faith turned 3 in March & after an initial shy period is adored by most everyone she meets. She loves books, puzzles, balloons, fake tattoos, coloring, & painting. Her favorite characters are Cinderella (along with any princess), Barbie & Shrek. She is quite the gum connoisseur, giving her opinion on different flavors such as, “Mmmm, juicy,” or “Yucky,” or “Too spicy!” The movies she could watch everyday are Polar Express, Barbie Ballerina & lately, her parents’ wedding video, hahaha! Faith absolutely loves to eat crab legs in butter (good for high calories), vegetables & of course, candy. She is such a smarty & asks quite the inquisitive questions like, “How do you make the car stop?” “What’s inside your head?” & the amazing out-of-the blue “Will the world be ok?”
In this past year, Faith has been on antibiotics 3 or 4 times because an illness has taken her little body too long to overcome; fairly typical in CFers. She had recurring sinus congestion for over 3 months, which almost put her in the hospital just before Christmas & yet another illness in January, again pushing the line of hospitalization. That sinus issue also caused her to lack an appetite & she began dropping drastically down the weight chart (it is important for her health to stay above the 50th percentile for weight as research has shown a direct correlation between lung function & weight).
We are truly blessed & grateful to have such a wonderfully caring & proactive CF team of doctors & nurses at Sutter who help to keep her in the best shape. Their efforts combined with those of mommy & daddy are what’s brought her back up to great health in February! Faith just had her 3 month check up with the CF team & is doing fantastic! Her lungs are clear, her weight is up & all her blood & throat culture labs are about perfect. Faith has always done a great job taking her enzymes with food & is now up to about 22 pills per day. She also does a breathing treatment & thumping vest (“bump bumps”) for close to an hour daily as prevention which helps clear & break up any mucus in her lungs. We are fully aware that her health can decline rapidly, which changes everything in a matter of days.
*ABOUT the walk:*
GREAT STRIDES is the Cystic Fibrosis (CF) Foundation's largest & most successful national fund-raising event. This year, it will be held at the *
Making a donation is easy & secure! Just click on the link above & it will be credited to our team. Or you can give me cash or check (payable to Cystic Fibrosis Foundation) & I can donate it at the walk site. *Any amount is greatly appreciated!* If you need any ideas for fundraising on your own, I’ve got a gazillion or if you are unable to donate, please come walk with us anyway!
Once again, thank you for supporting our family & the mission of the CF Foundation!
Stephanie @-->----
Proud mommy to Faith, almost 3yrs w/ Cystic Fibrosis & Brooke, 1 year w/o CF
Copyright . Stephanie. All rights reserved.
