Team FaithFULL
Dedicated to the awareness & search for a
CURE to CYSTIC FIBROSIS:
a chronic, progressive & life-threatening genetic disease.
Our sweet daughter, Faith, has Cystic Fibrosis. This site has been created in order to welcome the spread of awareness of this horrible disease & to serve the CF Foundation in hopes of a nearby cure. You will also find updates about Faith, CF news & local CF events for the Sacramento area. We look forward to sharing our family, team FaithFULL news & precious memories with you for years to come! Feel free to explore the site, it is a constant work in progress. You can even leave a message in the guestbook! |
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Sacramento's GREAT STRIDES 2010 was held May 1 at the state capital! Over 60 people joined Faith on that beautiful day & as a team we raised over $7500 so far! Donations are accepted all year long!
For UPDATES on the family, please click here.
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We would like to share our deepest condolences to the family, as well as admiration to the life of Miss Brandie Maxwell. After coming home from vacation, we sadly learned that she lost her battle to CF on Tuesday September 24, 2008 at the young age of 24. She was very active with the Cystic Fibrosis Foundation, serving most recently (as her health permitted) as Sacramento Chapter's Media Representative with pride and conviction. Please say a prayer for her family. This is one more unfortunate realization as to how severe CF is & why better medications & a cure need to be found. Brandie, you will be missed by many...we know that you are in a peaceful place where you can finally breathe deeply...
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Thanks to EVERYONE who joined us at the 2nd Annual "SPEEDING TO A CURE"
Sunday, September 14, 2008
Some of the event photos can be seen at
speedingtoacure2008.snapfish.com/snapfish
We'd sincerely like to thank legendary race car driver SCOTT PRUETT & wife Judy for supporting our fundraising efforts!
Our event was able to raise almost $7,000....close to double last year's funds raised! We also have much appreciation for www.SpectatorRacing.com for allowing us to have this event, Blue Northern Builders for supplying the BBQ lunch, James Dempsey of JDJ Entertainment for the great music, & Partylite, Kazoku & Freedom Rides for sponsoring the event - as well as ALL of the donors of the 38 great raffle prizes!
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As Faith’s mom, CF advocate, volunteer & team leader, my objective is to reach out to as many people as possible, starting with you. As a team member, you are asked to raise money by encouraging your friends, family & business associates to contribute to a worthy cause. You can tell people that their 100% tax-deductable donations will be well spent towards investment in vital CF programs to support research, care & education.
Please watch Faith's video above & know that this fund-raiser will be helping to extend the health & life of Faith & 30,000 others battling CF. We are still losing precious lives to CF every day!
*ABOUT Faith (2008):
Faith turned 3 in March & after an initial shy period is adored by most everyone she meets. She loves books, puzzles, balloons, fake tattoos, coloring, & painting. Her favorite characters are Cinderella (along with any princess), Barbie & Shrek. She is quite the gum connoisseur, giving her opinion on different flavors such as, “Mmmm, juicy,” or “Yucky,” or “Too spicy!” The movies she could watch everyday are Polar Express, Barbie Ballerina & lately, her parents’ wedding video, hahaha! Faith absolutely loves to eat crab legs in butter (good for high calories), vegetables & of course, candy. She is such a smarty & asks quite the inquisitive questions like, “How do you make the car stop?” “What’s inside your head?” & the amazing out-of-the blue “Will the world be ok?”
How do you respond to a question like that from a 2.5 year old?...I’ll tell you that on days when I’m literally laying on her with most my weight so she can have 5 vials of blood drawn to check how her body is coping with CF, things surely don’t seem to feel OK. Sadly, those times are only minimal compared to what she may go through someday soon….for every time she gets sick, she walks the tight rope of possibly needing hospitalization and IV’s to get through the infection.
In this past year, Faith has been on antibiotics 3 or 4 times because an illness has taken her little body too long to overcome; fairly typical in CFers. She had recurring sinus congestion for over 3 months, which almost put her in the hospital just before Christmas & yet another illness in January, again pushing the line of hospitalization. That sinus issue also caused her to lack an appetite & she began dropping drastically down the weight chart (it is important for her health to stay above the 50th percentile for weight as research has shown a direct correlation between lung function & weight).
We are truly blessed & grateful to have such a wonderfully caring & proactive CF team of doctors & nurses at Sutter who help to keep her in the best shape. Their efforts combined with those of mommy & daddy are what’s brought her back up to great health in February! Faith just had her 3 month check up with the CF team & is doing fantastic! Her lungs are clear, her weight is up & all her blood & throat culture labs are about perfect. Faith has always done a great job taking her enzymes with food & is now up to about 22 pills per day. She also does a breathing treatment & thumping vest (“bump bumps”) for close to an hour daily as prevention which helps clear & break up any mucus in her lungs. We are fully aware that her health can decline rapidly, which changes everything in a matter of days.
*ABOUT the walk:*
GREAT STRIDES is the Cystic Fibrosis (CF) Foundation's largest & most successful national fund-raising event. The past few years, it has been held at the *
Donations are accepted all year long and are used efficiently and effectively toward supporting research & specialized care that improves the quality of life for those with CF. And, it's tax-deductible.
Making a donation is easy & secure! Just click on the link above & it will be credited to our team. Or you can give me cash or check (payable to Cystic Fibrosis Foundation) & I can donate it at the walk site. *Any amount is greatly appreciated!* If you need any ideas for fundraising on your own, I’ve got a gazillion or if you are unable to donate, please come walk with us anyway!
Once again, thank you for supporting our family & the mission of the CF Foundation!
Stephanie @-->----
Proud mommy to Faith & Brooke
Copyright . Stephanie. All rights reserved.
